My Experience in Parenting a Disabled Child, and what I learned along the way. How to have vision when the eyes don’t see it. Part II

As our daughter continued with learning biblical scripture, and many other poems, her memory was undeniable sharp. She was excited with knowing that soon she would be enrolled into pre-K. Her ophthalmologist told her he would get her some really cool glasses to prepare her for school.

The following year, school finally arrived and I talked to her about the importance of her glasses and keeping her connected and engaged with the other children. Several days I would pick her up after school and she would tell me what she learned at school and how excited she was to be at school. After, the untimely death of my husband , the following year she was enrolled into a Christian academy. She excelled there. She won numerous academic and talent show awards. She rarely brought home school work her first few years of school. She said I like to complete my work at school because the teacher is there if I have any questions. All her subjects she received excellent marks.

By her seventh grade year she entered public school. She was late getting started because she had lost her vision in one eye due to a detached retina. It was a difficult year, she continued with great marks however math became a challenge. Her teacher didn’t know how to accommodate her low vision, and too be honest I as her parent was seeking ways to better understand her challenges and the equipment she needed. She truly had major challenges, often she would fall because her balance was off, it became a regular occurrence for me to pick her up from school and she had scrapes, scratches, cuts, etc, on her face, knees and elbows. The school allowed her access to the elevator to aid in her falling down the stairs. She began to meet other children in her school and they were happy to hang around her. She met another student name Marilyn and to this day they are friends.

By this time I was preparing her for high school. I reminded her to make great grades and she would be in the top two percent off her class and could receive a scholarship to college. She studied, and studied, and many nights it was after midnight, I would find her up doing homework. Due to her low vision, it would take her twice or three times longer to complete her assignments. Her counselor suggested a remedial diploma, but she said absolutely not. There’s nothing wrong with my brain and thinking, its my unreliable vision that causes issues. She wanted to sing in the school choir and she did. She wanted to play in the band , she was given a marimba by the teacher and was welcomed into the group. She was in the marching band , already set up when the band would march on the field. She was so proud of her uniform.

Many school challenges and champion moments were experienced in school. We were told about a school in Austin, Texas that had the latest and greatest technology for blind and visually impaired students. I immediately called them for Eryn to be apart of this program, the school director instantly became interested in meeting her. She attended the summer school program, it was the beginning of a life friendship and bond with other students and staff. My mom was so amazed with the smiles and warm hearts of the kids. She would say, “I’ve never seen such happiness from people .” I have a new “perspective on life, I thought that they should be met with unhappiness, and struggles however, I’m witnessing just the opposite.” She wanted to assist may students with canes, but was quickly told by them “no thank you” I don’t need your help. This is a place for sighted individuals to visit and be enlightened by the amazing things that visual impaired people are capable of doing.

My daughter excelled in many area that “normal” people thought was impossible. That’s another term, I’m not to keen on when its used, because what is normal? She invented many ways to copy her assignments from the chalk board. She would take a picture of the board and use her tablet to read it. She invented all sorts of handy things to aid her limitations. High school graduation arrived. A few of my family knew she had graduated in the top two percent of her class. The big reveal came when our family and friends arrived and was treated with the news that she was graduating with such high marks.

Stay tuned for nexts weeks article on ways to improve your child’s creativity with positivity and other invigorating ideas.

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4 thoughts on “My Experience in Parenting a Disabled Child, and what I learned along the way. How to have vision when the eyes don’t see it. Part II

  1. Awesome ! I’m sure her determination to reach the goals she set and a loving, patient, and supportive mother helped her over hurdles and disapointmentss to achieve success… I pray all is well currently.

    Liked by 1 person

    1. Absolutely. Thank you for your encouraging comment. Thank you also for supporting and tuning into this channel. It is our desire that you become a regular viewer and bring others with you. See you next week

      Like

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